Learning Hub
Recommended resources
A curated collection of publications, organisations and practical resources that we think may be useful for patients, families and health professionals.
Ehlers-Danlos Syndrome (EDS)
The Ehlers-Danlos Society
The Ehlers-Danlos Society is an international organisation supporting people affected by Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Their website includes information about EDS and HSD, management resources, research and education, support resources, and information for healthcare professionals.
Visit The Ehlers-Danlos Society →
Healthcare Professionals Directory
The Ehlers-Danlos Society maintains an international directory of healthcare professionals with an interest or experience in EDS and HSD. The directory can be searched by location and profession and may be helpful when looking for clinicians familiar with the complexities of hypermobility-related conditions.
Search the Healthcare Professionals Directory →
Bendy Bodies Podcast
Hosted by Dr Linda Bluestein, Bendy Bodies explores Ehlers-Danlos syndromes, hypermobility spectrum disorders and related conditions through conversations with clinicians, researchers and other experts. Episodes cover a broad range of topics including pain, rehabilitation, dysautonomia, gastrointestinal symptoms and navigating complex multidisciplinary care.
Featured episode: What Can Difficulty Swallowing and Voice Fatigue Mean?
This episode focuses specifically on voice and swallowing difficulties in EDS and hypermobility spectrum disorders, featuring our colleague, Speech-Language Pathologist Stacey Menton from the Mayo Clinic. It explores how swallowing and voice symptoms can present in this population and the role of Speech Pathology in assessment and management.
Watch or listen to the featured episode →
Australian POTS Foundation
The Australian POTS Foundation provides Australian-specific information, education, advocacy and support for people living with Postural Orthostatic Tachycardia Syndrome (POTS), their families and healthcare professionals. Their resources cover POTS symptoms, diagnosis and testing, management, research, and practical information for navigating everyday life with dysautonomia.
Visit the Australian POTS Foundation →
POTS Knowledge Hub
The Foundation’s Knowledge Hub brings together educational resources, research, webinars, podcasts and practical information about POTS for patients, families and healthcare professionals.
Explore the POTS Knowledge Hub →
The Hypermobility Syndromes Association
The Hypermobility Syndromes Association (HMSA) provides information and support for people living with symptomatic hypermobility, including EDS and HSD. Their resources have a practical focus on understanding hypermobility, managing symptoms and supporting everyday function, with information available for both individuals and healthcare professionals.
Visit the Hypermobility Syndromes Association →
Ehlers-Danlos Support UK
Ehlers-Danlos Support UK provides education, information and support for people affected by EDS and HSD. Their website includes extensive patient-friendly information about different aspects of living with and managing EDS and HSD, much of which is relevant regardless of location.